Join the NLMSF TEAM and bring your ideas, creativity, commitment, and enthusiasm to help make a difference for the LMS Community.
The National Leiomyosarcoma Foundation (NLMSF TEAM) embraces a dedicated and committed volunteer community of active LMS patients/survivors, caregivers, families, friends, co-workers, advocates/supporters – who all contribute to the mission and purpose of the Foundation.
Help the Foundation with a small project or initiate a project you feel passionate about doing, based on your time and availability.
The Foundation has at least 50 fundraising ideas to share. Students and young professionals can also be Community Ambassadors to help raise awareness and LMS research funding.
Bonnie has led multiple creative fundraising initiatives for NLMSF, rallying her community to support patients, families, and research. Her dedication and energy are a powerful example of how one Community Ambassador can make a meaningful impact.
Contact Annie at 303-808-3437 or email annieachee@aol.com to join our team or for more information.
Throughout the year, the NLMSF hosts various educational programs for patients, caregivers, and medical professionals. These events provide valuable information about LMS treatments, research developments, and support resources.
Check our Patient Education page for calendar updates on upcoming programs and events that you can attend or help organize.
View Education CalendarThink of a project at church, school, work, or club affiliation, in connection with a holiday to make it a festive fundraising effort. Fall is a great time to launch a fundraising project.
A fundraising event on this day would highlight awareness of LMS. Contact Annie for the Ideas List to help you get started.
Organize a community race with registration fees benefiting NLMSF.
Host a dinner event with ticket sales supporting LMS research.
Offer gift wrapping services during holiday seasons for donations.
For a complete list of fundraising ideas or to discuss your own creative project:
Contact Annie for Ideas
Help reach out to the Non-Sarcoma Community Providers where you live - with doctors, nurse navigators, P.A.'s involved in your care.
Reach out to Annie at 303-808-3437 to discuss how to help in this initiative - we have your small tool kit to get you started.
See the image for detailed instructions on how to use your tool kit effectively!
Learn all about this initiative by the NLMSF and the Sarcoma Coalition initiative started in 2020 - and jump on board to help us help others in the future. We can do this together and "pay it forward!"
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Do NOT IGNORE - A Possible RED Flag!
A lump or bump can be deep or subcutaneous and may be painful. It may change size over time / be persistent / involve deep tissue.
An in-depth consultation and evaluation is necessary to eliminate the potential for possibly overlooking a form of Sarcoma. Delays in treatment can be critical.
MRI imaging is best / ultrasound at a minimum initially.
Biopsy / surgical intervention will reveal whether or not there is a sarcoma - Consult with a Sarcoma Specialist if it is.
Royal Orthopaedic Hospital / Sarcoma UK, associated with the Golf Ball approach to detecting a sarcoma
Watch VideoPanel Discussion of Sarcoma Specialists from across the country
Watch VideoAs a Patient or Family member / Caregiver - if you would like to be the "Boots on the Ground" Ambassador for this initiative:
It is all about the present and the future of Leiomyosarcoma research breakthroughs to advance treatment options and extend survival for patients.
All donations are investment "gifts" directed to LMS research – lighting the way to the discovery that can turn into clinical care treatment options... "gifts" that keep on giving!
It is easy to make a contribution to research in honor or tribute for someone who has been a special part of your life.
Through "investing" in LMS Research, patients, families, and friends come together to support and contribute to the Foundation's funding of important LMS research projects.
Donate TodayThe NLMSF supports volunteer opportunities across the United States, with regional coordinators who can help you get involved in your local area:
Help coordinate and facilitate support group meetings for LMS patients and caregivers in your community.
Find Local GroupsParticipate in events across the country to raise awareness about LMS and support patient education.
View CalendarSupport our partnerships with sarcoma centers of excellence nationwide by helping distribute educational materials and resources to patients.
Join ProgramNo matter where you live, you can make a difference. Contact our National Volunteer Coordinator for information about opportunities in your region.
Call: 303-808-3437
Social Media Participation
Be a Facebook/Twitter Participant
Connect with patients, supporters, and Foundation board members on social media. See information updates posted about research articles, news, and updates.
How You Can Help on Social Media: