Inform – Inspire – Empower

Through Education / Advocacy/Research                                                                                                

  OUR MISSION IS OUR PASSION

                                            “What we can do today can affect what happens tomorrow –
                                                           We Have what it Takes to Help Each Other!”

  •      The NLMSF- SPAEN INTERNATIONAL RESEARCH ROUNDTABLE
  •      The PATIENT-CAREGIVER ADVOCACY NETWORK [ROUNDTABLE]
  •      The SURVIVORS INSPIRE PEER NETWORK
  •       The  LMS  LIFELINE BUDDY PROGRAM
  •      24/7  Direct Patient/Caregiver Helpline:   303  808-3437
  •       Annual Patient-Family LMS Education Symposia throughout the USA/Canada
  •       Education Webinar collaboration with other cancer organizations
  •       The Cancer Cell Line Project – patient drive tumor registry for Crisper

Crispr /  repurposed drug screening /  global data access for Research

  •       NCI MyPart Network –  patient natural history data collection partnership
  •       Connect with a Clinician Program for general Q & A
  •       Collaborative Partnerships with other organizations to enhance
           Patient – Family resource support
  •      Sarcoma Coalition – Steering Committee membership for
         collaboration with 20 other sarcoma organizations
  •      Research Advocacy Council – to collaborate with other sarcoma organizations
         to impact clinical trial patient participation and outcomes
  •      Three Foundation websites – to offer resource assistance throughout the
          diagnosis / treatment journey of patients and caregivers
  •      Weekly News Letters for clinical trial updates, research updates and wellbeing
          educational opportunities, well-being resource information

                                             DIRECT CONTACT TO THE FOUNDATION:   A N N I E    A C H E E  
                                                                
annieachee@aol.com or 303  808-3437