I am a dedicated professional with a diverse background in technology and community engagement, currently contributing to innovative projects at Deloitte. With a passion for leveraging technology for positive impact, I am honored to serve as a Board Member of the NLMSF, where I support the sarcoma community through advocacy, education, and research initiatives.

I am actively engaged in thought leadership, having discussed advancements in agriculture autonomy on The Road to Autonomy® podcast and contributed to impactful initiatives like Yes San Francisco in collaboration with the World Economic Forum, Deloitte, Salesforce, and The San Francisco Chamber of Commerce.

My message to the sarcoma community is one of resilience and collaboration: "Together, we can drive meaningful change and inspire hope through action."

I am a survivor of sarcoma for the past 13 years. I also have a FB group – Sarcoma (Cancer) Awareness to help others and "pay it forward" and now as a Board Member of the NLMSF, I feel even more empowered to be able to support patients and their families.

I have appreciated the NLMSF's approach and professional integrity in the work being done for support, education, and research on behalf of the sarcoma community and I am happy to be a part.

I am still employed, and I am a grandfather of 2 granddaughters. I am also an amputee of my left leg because of sarcoma cancer.

"Hope is the only thing stronger than fear." is my message to all.

As the husband of a recently deceased ULMS patient, I can think of no better way to honor my wife than to support the work of NLMSF. After receiving a diagnosis with LMS, you are literally in for the fight of your life. Most of us do not have a medical background, but need to get up-to-speed quickly to make good choices for treatments that will increase chances for survival. That is where this group can help.

Then, there is the emotional side to treatments. Side effects, reactions and appointments place an enormous amount of stress on the patient and caregiver. Reading the medical disclosure for treatments can be overwhelming. You need someone who hears your concerns and provides some first-hand experience.

You will be told everyone is different. That is true, but you still need a sense for what lies ahead, what to look for and where to turn for help. I have joined the NLMSF to support their mission and purpose – i believe in their genuine efforts to help others through comprehensive websites, newsletters, patient programs and more.

I was diagnosed with LMS in 2020 and with metastatic LMS in 2021. I have an assistant professor of Computer Science in the Jodrey School of Computer Science at Acadia University in Nova Scotia, Canada. I am now applying machine learning techniques to search for patient features (e.g., biomarkers) that help predict which treatments are best, to be applied on an individual level. My past research involved predicting who was most likely to give a charitable gift to a given organization. I worked with smaller data sets (which we often run into with LMS) but still produced accurate models. I'm hoping to produce similar LMS prediction models.

I am a Cancer Immunotherapy Coordinator for patients interested in going to Germany for Dendritic Cell Therapy treatment.

I am happy to be a part of the NLMSF Foundation, as I feel they are a special group to advocate for the LMS Community.

I am married to my wonderful wife Melissa and we have 3 children and it's for them that I'm doing this research.

I hail from New Jersey, and am a graduate in Economics from Seton Hall University. I am long time survivor, having been diagnosed in 1996 and treated at Memorial Sloan Kettering in NY. I was one of the original members of the National Leiomyosarcoma Foundation, having attend their first HugFest in Lancaster, PA.

I am blessed with a loving family and blessed to be affiliated with the NLMSF.

I believe in the goodness of my fellow board members and want to help the LMS Community through collaborative Foundation support and advocacy in to honor the legacy of Mr. Edmund Hoag and his board members – carrying on their original mission of supporting the LMS patients and their families.

Chandalyn Williams is a highly motivated and experienced executive professional, regarded for her ability to deliver outstanding results with the highest degree of expertise and professionalism. She holds a Bachelor of Arts degree in Business Administration and Communication Management from Jones International University, graduating Cum Laude; a Master of Business Administration from Texas Woman's University and; is currently within one year of completing her Doctorate of Business Administration at Trident International University. Chandalyn has served as an inpatient volunteer with M. D. Anderson Cancer Center, advocated on public platforms, such as Rare Disease Day at the Texas State Capitol and led annual 5K Run/Walks for over nine years in support of Leiomyosarcoma (LMS) Cancer research.

"When my mother, Cynthia Solomon Holmes, was diagnosed on April 8, 2010 with Leiomyosarcoma (LMS) after visiting her doctor for a persistent cough, I was not prepared for how my world as I knew it would be turned upside down. Watching my mother fight this disease with the strength and vigor I knew to be her was an overwhelmingly painful experience. I felt physically helpless – but I knew how to pray. For her, my family and me. Following only a three-month battle with this dragon, my mother succumbed to the disease, passing away at the age of 52. I vowed to turn my personal tragedy into something that could be triumph for others who are faced with this disease through the creation of The Cynthia Solomon Holmes Foundation. I pray that through my efforts, individuals are inspired to support those battling this disease and in the daily fight for their right to live!" ~ Chandalyn Williams