Connecting patients, survivors, and caregivers with resources, peers, and professional support for the Leiomyosarcoma journey
The National Leiomyosarcoma Foundation offers various support groups designed to connect, inform, and empower individuals affected by Leiomyosarcoma. Whether you're newly diagnosed, a long-term survivor, or a caregiver, we provide ways to connect with others who understand your journey.
Connect individually with peers and professionals who understand your journey
Join virtual support groups to share experiences and find support anytime
Meet with others in your area for in-person connection and support
Access programs tailored to specific needs like caregiving and bereavement
| Support Group | Type | Description | Connect |
|---|---|---|---|
| LMS LIFELINE Buddy Program | One-on-One | Peer-to-peer patient match program for personalized support | Request Match |
| Connect With a Clinician | Professional | Access volunteer sarcoma specialists who answer questions about treatment options | Ask Question |
| NLMSF Facebook Group | Online | Official foundation support community for patients and caregivers | Join Group |
| Stand Up to LMS | Online | Advocacy and support network focused on empowerment | Join Group |
| Cancer Sucks - LMS | Online | Candid discussion and emotional support community | Join Group |
| Rocky Mountain LMS Support | Regional | Colorado, Wyoming, Nebraska patient-caregiver connection | Contact Group |
| LMS Clinical Trials Perspectives | Discussion | Bi-monthly peer-to-peer discussion about clinical trials experiences | Join Discussion |
| LMS ABC's Support Group | Educational | For new and recurring diagnoses: managing, asking questions, and coping | Learn More |
| Caregiving Counts | Caregiver | Support specifically for caregivers of LMS patients | Get Support |
| Survivorship & Coping Workshops | Collaborative | Patient-caregiver team discussions for sharing experiences | Find Workshop |
| Open to Hope | Bereavement | Support for families who have lost a loved one to LMS | Visit Website |
Access our library of educational content at your convenience:
Join our interactive learning opportunities:
Resources specifically for those supporting loved ones with LMS:
Compassionate resources for families experiencing loss:
Guidance for life after treatment:
Contribute to research while informing your treatment options:
Help advance LMS research through these collaborative programs:
NLMSF is proud to be part of these collaborative efforts to improve care and outcomes for LMS patients:
"The NLMSF Buddy Program connected me with someone who truly understood what I was going through. Having someone to talk to who had been through the same treatments made all the difference in my journey."
"As a caregiver, I felt lost and overwhelmed until I found the Caregiving Counts program. The guidance from other caregivers helped me navigate this difficult journey and better support my wife."
"The Facebook groups have been my lifeline. Being able to connect with others who understand exactly what you're going through at any time of day or night has helped me feel less alone in this fight."
Complete our confidential form describing your diagnosis, treatment stage, and specific concerns. Our team will carefully match you with a trained buddy who has a similar experience. Matches are typically made within 3-5 business days.
Your call will be answered by a trained volunteer who understands the LMS journey. They can provide emotional support, information about resources, and practical guidance. All conversations are confidential, and follow-up assistance can be arranged if needed.
Speak with your oncologist about your interest in genomic testing. The NLMSF can provide information about partner programs like Perthera, CERTIS, Boston Gene, and the Broad Institute. Some programs may require tumor tissue samples, while others can work with blood samples or existing test results.
Most NLMSF support services are provided at no cost to patients and caregivers, thanks to our donors and volunteers. Some specialized genomic testing programs may have costs, though financial assistance might be available. Our team can provide specific information for each program you're interested in.
