NLMSF Community Snapshot News

January and February programs to be alerted to Immunotherapy for Sarcoma information Chemo Corner and Pete's Blankets of Hope - for Chemo Patients

The National Leiomyosarcoma Foundation shares ongoing support resources, upcoming community advocacy events, insurance guidance, and new research presented in plain language to empower patients and caregivers. The message also highlights wellness and mental health supports, including stress management options like magnesium education and EMDR therapy, reinforcing that patients are not alone and their voices matter.

NLMSF’s Dec 13, 2025 update shares holiday support for patients and families, gratitude to clinicians and researchers, caregiver resources, and symbols of hope. Highlights include a Dec 15 pathology webinar, launch of the 2026 “Circle of Hope” patient think tank, closure of the Count Me In study with 975+ participants, and ongoing fundraising for sarcoma research.

Seasonal outreach from NLMSF, including a purple snowflake and bracelet available by request. This issue spotlights key patient resources: palliative care guidance, second-opinion pathways through OSU’s James Cancer Center and Cancer Care Concierge, and the full NLMSF second-opinion directory. Additional support programs include the Patient Advocate Foundation and HealthWell Foundation. Featured educational updates include MD Anderson insights on diabetes during treatment, Mayo Clinic’s tips for improving gut health, and UCSF research on gut microbes and chemotherapy side-effect reduction. Also highlighted: progress toward the 8th Annual LMS International Research Roundtable and the upcoming 2026 consensus paper on LMS management.

Announcing the new NLMSF initiative launching in 2026. Upcoming online patient information sessions. Dr. Mathew Ingham meets with patients and families to discuss an important clinical trial. Key guidance on understanding pathology reports. LMS research highlights, practical living tips, immune-boosting foods, and insights on depression related to diet, stress, and exercise. Plus, how you can make a difference on Giving Tuesday.

Expert reflections on CTOS’s 30th anniversary and its impact on global sarcoma research. This special edition honors Dr. Brian Van Tine — a visionary physician-scientist whose leadership, mentorship, and dedication shaped the sarcoma community. Highlights include NLMSF’s 2025 Young Investigator Award recipients, upcoming sessions in the Sarcoma Research in Review series featuring ctDNA progress, and presentations from leading researchers across major cancer centers.

Highlights include an overview of the Sarcoma Coalition and its collaborative impact across 34 organizations, details about the upcoming Sarcoma Community Meet-Up in Boca Raton, and a summary of October’s recorded information session on Precision Nutrition through the SAVOR Health platform. Additional updates cover LMS research insights, National Cancer Institute annual progress statistics, and new findings on first-line therapies for advanced nonuterine LMS. Featured clinical trial news includes the global Phase 3 ARGSARC study and key LMS trial resources. This issue also provides practical guidance on managing finances after a cancer diagnosis, ASCO-supported cognitive health strategies such as yoga and mindfulness, and a call to action to help accelerate LMS research through advocacy and community support.