Providing education, support, research funding and advocacy for the
Global LMS Community as we move forward in the quest for the cure.
A guiding light for patients and caregivers facing a LeioMyoSarcoma diagnosis.
Explore current clinical trials that include leiomyosarcoma so you can discuss options with your care team.
Open Leiomyosarcoma Trials on ClinicalTrials.govThis link opens the official ClinicalTrials.gov website with results already filtered for leiomyosarcoma.
Start here to find the most helpful information for where you are in your LMS journey.
Learn the basics, key questions for your care team, and first steps after diagnosis.
Prepare for treatment, understand side effects, and find caregiver-specific support.
Explore quality-of-life resources, follow-up care, and survivorship support.
Sarcoma OncLive videos from Sarcoma Specialists throughout the country
View Latest Research UpdatesWe are here for you
Sarcoma Program Director, Alvin J. Siteman Cancer Center
"I love this group, it makes a difference."
Professor, Northwestern University Feinberg School of Medicine
"I love the NLMSF – I love the patient programs held – your signature support advocacy to collaborate with sarcoma centers..."
Director of UCLA Sarcoma Medical Oncology
"The National Leiomyosarcoma Foundation is an important organization that strives to gather a critical mass of patients, scientists, patient advocates and physicians..."
Discussion Topic: RECIST Responses to Radiation in Retroperitoneal Soft Tissue Sarcoma: When and How Often Do They Occur?
What is RECIST? RECIST (Response Evaluation Criteria in Solid Tumors) is a standardized set of criteria used in cancer care and clinical trials to assess how solid tumors respond to treatment—primarily by measuring changes seen on imaging (CT or MRI). RECIST helps clinicians determine whether a tumor is shrinking, stable or growing.
Register Now →A complimentary Quick Tips Care Guide is offered to attendees and all who wish to request it by sending a note to annieacheee@aol.com.
Register Now →Join this webinar panel discussion on what Histotripsy is and how it is used for treatment in sarcomas. Sarcoma experts break down histotripsy and what this emerging noninvasive treatment could mean for sarcoma patients.
Register Now →What Can the Future Hold For Us All? 2026 Year-End Message and Accountability Report Upcoming Online Patient Information Sessions 1/8/26 - Circle of Hope Community Round Table 1/9/26 - The TRACER Project with Dr. Gujral LMS Research Highlights Clinical Trial Highlight Tips for Living with LMS The Do's and Don'ts of Eating for Immune Support During Cancer Elevate LMS Research
View full newsletter →January and February programs to be alerted to Immunotherapy for Sarcoma information Chemo Corner and Pete's Blankets of Hope - for Chemo Patients
View full snapshot →Access our comprehensive library of educational videos, webinars, and resources designed to help patients, caregivers, and healthcare providers better understand LMS.
Access our comprehensive annual reports documenting our progress, achievements, and financial stewardship
Our comprehensive 25th anniversary report detailing research funding, grant awards, repurposed drug initiatives, and expanded international collaborations.
Our annual report highlighting achievements in leiomyosarcoma research, patient support programs, and community advocacy initiatives.
Working together with leading organizations to advance LMS research and patient care
James Cancer Center, Ohio State Univ
"The NLSMF provides a vital link between the community, including LMS patients, and the oncology researchers who work tirelessly to help develop a better understanding of this rare disease..."
Associate Professor, Sarcoma Service
"The National Leiomyosarcoma Foundation is an important organization that strives to gather a critical mass of patients, scientists, patient advocates and physicians to learn more about this rare disease..."
Hear directly from LMS survivors and specialists who have been where you are. Their stories provide insight, guidance, and hope for your journey.
Your support makes a real difference in the lives of patients and families affected by LMS.
